Looking back, I'd say September was the best in a long time, but it didn't come without some really bad days & an awful awful medication! The good news is, I'm now off that medication & on a new medication which so far (2 weeks in) seems to be the best yet.
It can be quite a nasty medication, so I have to start on a really low dose & gradually increase, to reduce the risk of side effects.
It's still a long way to go until I'm bouncing around, but I can already see some benefits & I'm REALLY hoping that as we increase the dose, the symptoms get better & better.
I really want (need) to get back to work & only a few weeks ago, this just didn't seem possible, ever. Now there is some hope.
I'm going back to the doctors soon for a review of the medication, but also to talk about putting a plan/exercise programme in place to gradually increase my activity & also strengthen my right side. I'll also be starting physio again on my neck, which is going to enable me to do so many more things I currently can't manage (if it works!). As you can probably tell, I'm feeling more positive than I have in a long time! I'm so hopeful for this new medication & I just hope things keep on improving as we increase it, because as much as it's better than any other Ive tried so far, my daily activities are still very restricted. Plus there's the fact this is the last medication on the list from the specialist, so if this doesn't work, I really don't know what's next.
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